Finally at rest in Boston after a week of emergency transfusions, multiple hospital stays, fundraising and travel.
Hours before we had to be at Stratton Mtn for the fundraiser, it became clear that Alice needed more red blood cells. This is a common side effect of chemo and one I hope our friends and family are getting used to, as it’s the reason we have to cancel so many plans.
So Matt & Alice dashed up to DHMC while Lana & I scrambled to find dog sitters and pack the bags. We all met at the mountain, missing the open bar 😐 but in time for dinner and for Alice to wow the crowd with her powerful speech. 😃
From Stratton, it was back up to DHMC for multiple scans. 🎉AMAZING NEWS! 🎈The remaining tumor tissue has been rendered “non viable” by chemo. And things are going as well as can be expected.
Back home to pack and say goodbye to friends and we were headed to Boston Thursday night. Arrived at Christopher’s Haven, met our sweetly enthusiastic host, and settled into our home away from home in the west end, Boston’s old Jewish neighborhood, literally steps from the hospital.
We met the new team at Mass General on Friday, learned the routine for radiation that will start on Monday, and were completely impressed by how warm and lovely everyone here at MGH is, as well as how the comfortable the facilities are. (With the frightening exception of the Disney mural.)
Bolstered by an easy morning and a gift from Zayde, we made dinner reservations for us all at the Tip Tap Room. “Ha!” said fate. Within minutes of leaving the hospital they called and said Alice’s blood counts were dangerously low and we were forced to haul a very annoyed teenager back to pedi hem/onc for more transfusions. One video game purchase and the surprise gift of Red Sox tickets 😃 from the child life department later, Alice was contedly eating dumplings and enjoying the 18th floor view. She was discharged at midnight.
We finally made it to dinner ( with Suzanne!) Sat night. It was delicious.